Auckland Down Syndrome Association’s mission is simple but vital. The registered charity connects with whānau, communicates helpful information and celebrates people with Down syndrome.
Set up in 1981, ADSA operates Auckland-wide. However, families in The West make up around 20 per cent of its members. The association’s free membership provides access to a wealth of information, resources, events, and more.
‘We are whānau-led,’ says Community Liaison Coordinator Paula Beguely. She says that ADSA believes all people are valued and contributing community members. The association supports and promotes the inclusion of people with Down syndrome in the community.
Paula is one of only two part-time paid employees. Her job is wide-ranging and incredibly rewarding.
She oversees the association’s communications, which include quarterly newsletters and an active social media presence. Paula also shares information from other providers, including therapy options, sports, dance and art classes, and much more.
According to Paula, families who engage with the organisation when their child is young are more likely to feel supported and confident advocating for their child’s needs. This, in turn, increases the participation and inclusion of people with Down syndrome.
Paula visits families with Down syndrome diagnoses and offers support, information, and a new baby gift pack. She also connects people with other families with Down syndrome children so they can develop a support network.
Support is a crucial aspect of the association’s work. Regular Sunday afternoon catch-ups are held at Grey Lynn Community Centre for families with children under 12. ‘The relationships formed at these events help our families support each other as their children grow up,’ reports Paula. Social groups for teenagers and adults are also available.
World Down Syndrome Day is celebrated on 21 March with a community gathering called the Big Picnic. Around 50 families attended this year and had a lot of fun with games, music and dance. ‘It’s a special day on the calendar, and it’s so joyful when everyone gets together,’ declares Paula.
ADSA also runs a popular two-day workshop for primary school educators. The course offers practical tips, guidance and strategies for educating students with Down syndrome.
As a charity, ADSA relies on donations and the support of funders. Getting help for organisational costs is an ongoing challenge. However, thanks to the Your West Support Fund, that burden was eased last year. The association used $10,000 to pay the operational costs that keep the show on the road.
‘The Your West Support Fund has helped ensure we continue our vital work supporting, connecting and informing West Aucklanders impacted by Down syndrome,’ advises Paula.
Her message to anyone affected by Down syndrome is simple: Reach out and get in touch. It could be life-changing.
Visit ADSA’s website for more information, and follow the association on Facebook to stay updated on the latest news and events.
